How We Help



Caring for a child affected by a fatal neurological disorder can create an enormous financial burden, and even families with excellent insurance coverage find themselves facing expenses beyond their resources. While it can't reduce the emotional impact of a devastaing diagnosis, meeting financial needs can be one of the simplest ways to help ease the stress of caring for an affected child. B Brave works with families to provide stipends and financial support based on need, including but not limited to:

·         Bill pay assistance (as applicable)

·         Equipment for affected child

·         Respite care

·         Help with groceries

·         Gym memberships/classes



The devastating diagnosis of a progressive or terminal disease affects all family members alike, and can have a profound impact on the relational, social and emotional state of each individual.  In many hospitals, psychosocial services are likely to be offered along with a child’s medical care.  B Brave's psychosocial support offerings can compliment these services, or provide a more comprehensive solution if these services aren't offered by the hospital.

B Brave provides support and resources in the following areas:

·         Individual (one-on-one) counseling

·         Family counseling

·         Peer-to-peer support/groups

·         Counselling for healthy siblings or other family members

·         Spiritual support



Facing the death of a child may be the hardest thing a parent ever has to do. People who have lost a child have stronger grief reactions, and often have more anger, guilt, physical symptoms, greater depression, and a loss of meaning and purpose in life. B Brave offers a variety of bereavement support options through education and other resources (see below). B Brave offers a variety of bereavement support options through education and other resources (see below), and one of our primary practical offerings is sponsorship of bereaved mothers to attend the Restoring a Mother’s Heart Retreat, which is offered annually through the Ethan M. Lindberg Foundation.



B Brave is committed to providing comprehensive educational resources to families affected by fatal neurological disorders. These resources cover a variety of topics and range from high-level informational overviews to more specific in-depth coverage on a range of related topics. For a complete list of resources, links, partner organizations, and our own B Brave Care Plan approach to caregiving, select Learn More below to view our Resources page.