PROJECT RARE

Ava’s Story

Rare Disease and adventure don’t usually mix, but this
Alaskan family is on a mission to make sure
all can experience the majesty of nature.

PROJECT RARE

Ava’s Story

Rare Disease and adventure don’t usually mix, but this Alaskan family is on a mission to make sure all can experience the majesty of nature.

Building Bridges to a Brighter Future

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project rare
No caregiver journey is the same, yet each caregiver needs one powerful thing:
Support.
We are here for you.

%

exhaust personal savings

%

say providing care is emotionally stressful

%

report feeling alone

Source: Rare Disease Caregiving in America 2018
“B Brave has allowed me to have a resource that I am able to refer my patients to, so they can have an extra layer of support during their most difficult time in their life.”
– Sally Fenik, CPN Cleveland Clinic
B Brave Foundation supports families so they can care for their child without added financial stress and uncertainty. We provide tools and tactics to improve communication between families and medical providers. We work to empower doctors, nurses, therapists and child life specialists with tools to better serve our families, bridging gaps in a fragmented healthcare system that is not designed to manage children with complex medical needs. We equip parents to be resilient during times of unimaginable sorrow. And, we work to help them heal.